Whitterer On Autism

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Cheers dears

I am faced with a moral dilemma of gargantuan proportions. [translation = as well as a minor etiquette issue] Tis the season of school wind down when invitations proliferate. Kindly folk at the school wish to offer thanks to their volunteers and show their appreciation for inadequate services rendered.

I find this a particularly delightful element of the American psyche. British people generally believe that they have a complete monopoly in the polite department, in both quality and quantity. Yet I do not ever remember experiencing such an outpouring of well wishes for minor services. [translation = although things may have changed in that last couple of decades]

One of my favourite authors, “Mr.Bill Bryson” has also remarked, much more eloquently upon these perceived differences.

I now find that in addition to the above, I, as well as all the other mother’s, have been invited to attend a ‘Mother’s Day Celebration’ in Junior’s class. I am led to believe that the sub-plot to this deal, is cake eating. I have two difficulties here. Firstly, following jaw surgery and an extravagant amount of elastic bands, I am unable to eat solid food. Secondly, even if I were able to eat solid food, ‘cake’ would not be high on my ‘preferred’ list of gastronomic delights. [translation = it would come directly after chocolate covered cockroaches] Whilst I am more than happy to bake cakes, decorate cakes and give cakes away, I cannot even recall when I last had occasion to force myself to consume the dratted stuff.

Cake by it’s very nature suffers from several fatal flaws. Now don’t get all distracted here, as I know that the ghost of ‘fruit cake’ has descended upon my erstwhile little American pals. Perish the thought! [translation = for reasons that are still not entirely clear to me, just the words 'fruit cake' are a cause for gurgles of hilarity on this continent.] Ban the vision of fruit cake and replace with American cake e.g. ‘white cake,’ or pound cake, especially as the latter is available on both continents and is the same. For those who are not bakers, pound cake is not dollar cake here, as the ‘pound’ refers to weight, not the rate of exchange.

The first flaw, is that cake is sweet. This puts it in one of the highest categories of ‘loathsome.’ Additionally, cake is often smothered in a wide variety of sweet slime. [translation = frosting or icing, or sometimes both if you a truly unlucky] Slime of course takes the prime place on the ‘loathsome’ scale. [translation = slime and sweet combined, would trump the latter, so truly aversive as to be vomit inducing]

So what is a mother supposed to do in such situations? Refuse the invitation and avoid the whole issue? Attend, but refuse to eat the cake?

Tempted as I am by either or both solutions, I have to swallow my misgivings and attend anyway.

I sit on a chair the size of a Toadstool. To complicate matters still further, all my children are aware that I dislike cake. This particular son, favours chocolate cake with ganache, but never ventures from this preference.

We examine his cake offering. [translation = a muffin the size of Manhattan]
“It is dah big!”
“Indeed it is.”
“It is dah vanilla which is being dah white.” [translation = unnecessary, he is clearly bilingual]
“Too true.”
“Dah frostin is dah pink.”
“Quite so, the very worst colour in the entire universe.”
We continue to gaze at the confectionery piece. [translation = joint attention, a rare and truly under valued quality]
“I am finking.”
“You are? Thank you so much for telling me that! Can you tell me what you are thinking?”
“Dat maybe you are not liking to be eating dis.”
“You are such a thoughtful little chap. Thank you.”
Who would have guessed at the depth of his magnanimous nature? [translation = "Sally- Anne" can keep her dratted marbles]
“What we be doing about dis problem den?”
Self generated problem solving techniques! Be still my beating heart.
“Not a clue. A real toughy! Do you think we should throw ourselves on the floor and scream a bit?”
“No! Dat will not be dah helping. I fink we be needin dah compromise.”
It’s official, ‘compromize’ is now my favourite word, enough to allow a ‘z’ to take preference! What has happened to my child? Who has zapped him? What did they zap him with? [translation = undoubtedly self initiated]
“Maybe……maybe I am eating it for you?”
“Really! You’d do that for me?”
“It will be being dah new food for me I am finking.”
“I cannot believe your bravery, and all for me! Thank you.”

I watch him attempt tentative ‘eating.’ I resist the urge to nibble part of him and content myself with one hand entwined around his middle. He snuggled back onto my lap, his fingers tremble with the paper muffin case. [translation = tactile defensiveness people often hate the texture of paper, especially on highly sensitive little digits] I pull it off for him as he made his attempt and I don’t want to tempt fate. The muffin rests on my palm, a plate.

The tip of his tongue edges out to brush the frosting. He remains like that for some moments before he slowly retracts his tongue. As he does so a little electric current courses through his body and mine, but for different reasons. I break off a piece of the crumb, tiny and hold it for him. We repeat the exercise.

He turns sideways to tuck himself under my chin and wipe his mucky mouth and face on my pristine white T-shirt.

That’s it! I’m finished. [translation = done] Now I can die happy. [translation = all will be well]

Greater love hath no neophobic child, than to eat cake for his mum for Mother’s Day. [Or any other day come to think of it]

1. Kill anything living in the refridgerator before it goes forth and multiplies.

2. Endeavour to regularly rotate the piles of clean laundry stacked on the sofa.

3. Fully evaluate cost/benefit analysis of moving to Canada.

4. Train cats to appreciate that children are their friends, not the enemy.

5. Train children to appreciate that confining cats in small places means that they’ll visit the Humane Society [the cats, that is to say.]

• Curb enthusiasm for tumble drier
• No! The tumble drier is not ‘big.’

6. Read paper daily to improve brain capacity

7. Seriously consider advice re
‘you deserve it.’
Find some useless, expensive pastime to indulge in. Short list possibilities;

a. Book club [remember that you’re teetering on maximum brain capacity!]
b. Tennis [you’re clothing would never be white enough and you would also increase pile of laundry on the sofa]
c. Become a ‘lady who lunches.’ Reconsider post jaw surgery and braces.

8. Commence new beauty routine to ward off advancing decrepitude;
• Cleanse, tone and moisturize twice a day OR
• Wash face with Dial [translation Fairy Liquid!] if you manage to remember.

9. Research self improvement courses;
check availability for 11:30 p.m. to 2 a.m.

10. Invent labour saving device to continuously suck all dirt from house. [Consider consequences for self prior to commencement e.g. unemployment]

11. Avoid lawsuit from neighbours; train children to wear at least one garment of clothing [preferably around the nether regions] by Summer. [2007 not 2008] Nakedness is no longer acceptable now that we are all Americans. N.B. hats don’t count for the purpose of clothing categorization.

12. Keep large hall cupboard permanently empty so that all ‘mess’ can be hurled inside at short notice to achieve instant ‘Homes and Gardens’ effect.

13. Count on fingers [and toes] blessings.
[Limit this exercise to once only, in any 24 hour period to avoid becoming too much of a fluffy bunny {translation = American}]

Perish the thought!

As adults, we try and remember that even the most wizened and cynical of us, can
learn from children. But does that still hold true if those children are autistic? Probably not. Not going to glean a lot of insight from those little chappies, and they are mainly chaps, depending upon which set of statistics you care to favour.

Personally, I like the one that suggests that as many as 1 in 166 children are diagnosed with autism. I love statistics because you can prove anything with them by careful manipulation. I thought that I was the only person locally, or even nationally with two autistic boys, but now that they’re both at the same school, I find that other families with two. [Ref 1]

What does that mean? Well, it means that together, we three families, have six children, autistic ones, of a similar age, in one school. If there are thirty children in a class, that means that each class will have an autistic child. And why would that matter? It means that your child will be in close proximity with mine. In fact, because my boys are only 17 months apart, they could be in the same class together.

They separate twins, but the same doesn’t apply to siblings, I’ve checked. That means that your child might sit next to mine, perhaps one either side. In fact those other autistic children, the two that are the right age, might end up in the same class too. My two and four more, because it’s largely a matter of chance. Wouldn’t that be super! Your child with four or six little autistic kids, all pals together in the same class. It would be even better if the class had only 20 children, although it would mess up my statistics a bit.

Your child would be a great role model for my children. Mine could copy yours, then they’d learn how to behave properly, just like yours do. Children learn more from their peers than their parents by the time they’re in school, a sort of transfer of allegiance if you will. But that’s fabulous for me, because you’ve taught your children a great set of moral values, things that mine might not understand, like non-discrimination and inclusion. You know, like the Barney song: ‘we include everyone!’ I bet your kids can sing every word perfectly. Doesn’t that warm your heart?

Don’t worry, I lied when I said that our children would meet. My children are in the special ed class, separate, protected and nurtured, because it would be ghastly if they were all in together. They might be bullied. Wouldn’t that be dreadful? Mine of course, not yours.

Fancy a play date? Pick up the phone and give me a tinkle.

[Ref 1] and don’t forget ‘George and Sam,’ by Charlotte Moore, but they’re on a different continent so we won’t count them. Then there’s Luke Jackson and his siblings {Freaks, Geeks and Asperger Syndrome} but they’re on the same tiny little island, so we’ll ignore them too.

They have broken the lock on the television and are occupied watching an advertisement. I lean against the door jam making an inventory of potential breakages and damage, during their unsupervised time.

I hear a nasal demand to ‘buy whilst stocks last,’ that two small people echo with perfection. My eyes drift to the screen; a handy dandy cleaning machine, that does not require parental or adult supervision during it’s working cycle. I wait for a price but I’m distracted by the mantra circling the room, ‘buy now while stocks last, buy now while stocks last, buy now while stocks last.’ Each echo has a corresponding giggle. I am uncertain which bit is the funny bit?

It’s enough to make me seriously consider nipping out to the shops to buy it there and then. Am I an advertisers dream or a challenged cleaner? I debate whether the shoe and sock nightmare is worth the effort, when the voice of doom cuts through my calculations, “you can’t buy it, it will be too noisy, they’ll never stand for it, you’ll never be able to actually use it!” I look at my 9 year old daughter, the voice of sanity.

I grab a screwdriver and start poking the lock on the television door as junior starts up, “we go buy dah machine for dah cleaning?”
“No.”
“Why?”
“Er, it costs too many dollars,” I lie. He disappears and I hear a crash with an accompanying ‘oopsie.’ He reappears with something behind his back, a surprise no doubt. “Here you go!” he announces brandishing the dust-buster in my direction with a cheesy grin, “you can be using dis little noo noo instead.” Great problem solving, such consideration! “Der you go, now you can go and be playing upstairs wiv it where it won’t be hurting my ears.”

I will avoid mention of her views on toilets, since I need to avoid scatological references as I am a Brit. I had not considered that there was a possibility that somebody else might climb on the band wagon, to ceremoniously beat our conscious and sub-conscious selves. It is therefore with some surprise that I engage my youngest son in conversation. I enquire why he is pinching his nostrils shut?

“Because of the badest smell!” he screams, keeping his distance. I struggle to gain a purchase on his person and park him on my lap to extract further details. He writhes and wriggles making retching noises. Loud ones.
“What is the badest smell dear?”
“It is you! You are the badest smell. You are worster than peanuts!”
My! That bad!
“You don’t think I smell very nice?”
“NO!” I didn’t really need clarification there, more a moment to gather my wits.
“What can we do about that problem?” He pauses to gaze at the ceiling awaiting inspiration.
“I know! You can be living somewhere else?”
“Where would you suggest?”
“In dah garden. You can be living in dah garden in a tent.”
“But I hate camping!”
“You won’t be ‘dah camping,’ you will be dah living dere.”
So much logic! I need to re-configure my brain.
“But I don’t want to live in a tent in the garden. I will be lonely. Won’t you be lonely without me?”
What a stupid question. Any first year lawyer knows that you should never ask a question that you cannot predict the answer to.
“You will be lonely but I will be stinky free.”
I am somewhat flummoxed, not for the first time. Spouse sticks his head around the door to clarify:
“it’s the Marmite! You didn’t clean your teeth and gargle with mouthwash before you breathed on him.”

It would appear that the health and well being of a fellow human being, is less important than a pollutant free environment. [Ref 1]

[Ref 1] ecocentrism

after ECOCENTRIC adj.
The view or belief that environmental concerns should take precedence over the needs and rights of human beings considered in isolation.

I leave spouse in charge and dash to the shower. I’m not able to hear much because of the water, but as I stand on the toweling mat to dry myself off, I can hear voices outside in the hall: ‘d’ya luf me?’ Is that what he asked? Bless his little fragile ego! His speech delay makes him sound as if he has a mouth full of marbles. He is difficult to understand unless you’re familiar with his tone and phraseology, which I am.

I can also make out his sister’s voice, mumbling something or other. His phrase is repeated at ten second intervals as I pull on socks and a cardi. I don’t bother to brush my hair, just run my fingers through as I’m in a hurry. If I speed up I might just be in time to prompt her to make an appropriate verbal response, something to help repel his inner voice of doubt.

She is of such a kindly disposition towards her brothers, that I’m confident that she’ll manage it on her own. Nonetheless I’d like to witness it. I poke the corner of the towel in my ear to dislodge the water and clarify my auditory channels.
I step towards the door and swing it open. I see her sitting astride his back make making small growling noises. Her little brother’s words are suddenly clearer, easier to distinguish = ‘geroff me!’ he squalks.

Only one of them has taken readily to the motivational force of pocket money. [translation = an allowance] It’s probably just an age thing. she’s the right age and they’re too young. The boys have to be prompted through every reluctant step but their sister has become the allowance Queen, or should that be plague? She pounces on me at inconvenient moment demanding money with menaces, “what can I do? Can I get 50 cents for picking up that piece of paper?” She has acquired previously undetected haggling skills by osmosis. She has an endless list of ‘things to buy.’ Her brother already has every Pokemon that exists on the planet, and I have yet to find a suitable source of eggs for junior. I need fake eggs, but plastic ones. We don’t want to expand his horizons too far in case he gets hooked on the Faberge variety.

“O.k. 40 cents for picking it up? 25? Alright, say 5 cents?” I agree, because it’s still early enough to be dark, but does she give up claiming victory? Of course not. She’s relentless, energetic and young.
“O.k. how about another 50 cents for putting it in the bin?”
“What? You want 25 cents for picking it up and another 50 cents for putting in the bin?”
“Yup.”
“Forget it.”
“o.k. just 25 cents for picking it up then?”
“What are you going to do with it when you’ve picked it up? Just carry it around all day?”
“What’s it to you? You only said ‘pick it up.’ That’s what I’ll do if that’s what it takes.” Let me die now, it’s the other two that are supposed to be literal.
Once she’s in the groove she’s all over me like a rash as I bumble around in slippers and a dressing gown trying to restore order.
“Can I fix the table for breakfast for 50 cents?” I look at the table piled with papers, books, food scraps, left over homework and a wide assortment of writing materials. I dither momentarily, weighing up the benefit of her being able to earn the extra money she needs for a preferred toy, versus the benefit of consistency of routine for her brothers in being able to sequence laying their own place setting at the table?
“What! What! What’s taking you so long?”
“Er, O.k.” I continue to splosh around at the sink in the kitchen. She’s by my side within 30 seconds, “50 cents please.”
“You’ve finished already?”
“Yup, I’m done. 50 cents please?” I look over. The table is empty. Piles of debris line the edge of the wall.
“I thought you were going to lay the table for breakfast?”
“Nope, you didn’t say that, you said ‘clear if for breakfast.’ It’s clear, I need my 50 cents.” I determine to use my words more carefully, to be less cavalier. Her feet tap in the puddle on the floor as I count out five dimes for her, “don’t make that mess any worse dear,” I plead.
“Hey I can clear that up for you for 50 cents?” I press the coins into her palm and pass her her piggy bank, slip in a high five.
“No thank you.”
“Hey why not? You just want me to stay poor! You won’t let me earn what I need.” I look at the emotional blackmailer with awe. How does she know how to do that already? This is one aspect of her upbringing that has been missing, due entirely to the existence of her brothers. I would never appeal to anyone’s conscience, the ‘do it for me,’ ‘do it to make me proud / please me,’ as that has always been a waste of breath. So where has she found this talent? Is it innate?

A recall a million failed attempts of appealling to her brothers when we first started RDI [translation = Relationship Development Intervention] which I wasn’t very good at;
“Please, just for me, just once?”
“”Once’, what it is?”
“One time.”
“Oh, I not do it one time, I do it zero times.”
Or:
“Please, just to make me happy?”
“No, your face is happy now, that is stupid.”

Or, changing face to demonstrate unhappiness:
“Please, just to make me happy?”
“No, your face is a liar.” It’s enough to turn a mother prematurely grey. No, all such appeals were set aside together with the RDI book.

I look at my daughter, the expert at personal relationships aged 8.
“You should put it towards your college fund.”
“I have a college fund?” she asks with eyes like saucers. I don’t like to mention that any potential college fund has already been squanders threefold on her brothers’ therapy. I grab a cloth and slip to the floor “because I know that you’ll want to charge me more for obtaining a cloth first, another ten cents for disposing of the dirty cloth and object very strongly to wiping the splashes that are outside a three foot radius without additional payment.”

I stand and lob the cloth into the wash, “and besides I can do it myself is far less time than it takes to negotiate with you.” But I suspect that says more about my own shortcomings than hers.

Only one of them has taken readily to the motivational force of pocket money. [translation = an allowance] It’s probably just an age thing. she’s the right age and they’re too young. The boys have to be prompted through every reluctant step but their sister has become the allowance Queen, or should that be plague? She pounces on me at inconvenient moment demanding money with menaces, “what can I do? Can I get 50 cents for picking up that piece of paper?” She has acquired previously undetected haggling skills by osmosis. She has an endless list of ‘things to buy.’ Her brother already has every Pokemon that exists on the planet, and I have yet to find a suitable source of eggs for junior. I need fake eggs, but plastic ones. We don’t want to expand his horizons too far in case he gets hooked on the Faberge variety.

“O.k. 40 cents for picking it up? 25? Alright, say 5 cents?” I agree, because it’s still early enough to be dark, but does she give up claiming victory? Of course not. She’s relentless, energetic and young.
“O.k. how about another 50 cents for putting it in the bin?”
“What? You want 25 cents for picking it up and another 50 cents for putting in the bin?”
“Yup.”
“Forget it.”
“o.k. just 25 cents for picking it up then?”
“What are you going to do with it when you’ve picked it up? Just carry it around all day?”
“What’s it to you? You only said ‘pick it up.’ That’s what I’ll do if that’s what it takes.” Let me die now, it’s the other two that are supposed to be literal.
Once she’s in the groove she’s all over me like a rash as I bumble around in slippers and a dressing gown trying to restore order.
“Can I fix the table for breakfast for 50 cents?” I look at the table piled with papers, books, food scraps, left over homework and a wide assortment of writing materials. I dither momentarily, weighing up the benefit of her being able to earn the extra money she needs for a preferred toy, versus the benefit of consistency of routine for her brothers in being able to sequence laying their own place setting at the table?
“What! What! What’s taking you so long?”
“Er, O.k.” I continue to splosh around at the sink in the kitchen. She’s by my side within 30 seconds, “50 cents please.”
“You’ve finished already?”
“Yup, I’m done. 50 cents please?” I look over. The table is empty. Piles of debris line the edge of the wall.
“I thought you were going to lay the table for breakfast?”
“Nope, you didn’t say that, you said ‘clear if for breakfast.’ It’s clear, I need my 50 cents.” I determine to use my words more carefully, to be less cavalier. Her feet tap in the puddle on the floor as I count out five dimes for her, “don’t make that mess any worse dear,” I plead.
“Hey I can clear that up for you for 50 cents?” I press the coins into her palm and pass her her piggy bank, slip in a high five.
“No thank you.”
“Hey why not? You just want me to stay poor! You won’t let me earn what I need.” I look at the emotional blackmailer with awe. How does she know how to do that already? This is one aspect of her upbringing that has been missing, due entirely to the existence of her brothers. I would never appeal to anyone’s conscience, the ‘do it for me,’ ‘do it to make me proud / please me,’ as that has always been a waste of breath. So where has she found this talent? Is it innate?

A recall a million failed attempts of appealling to her brothers when we first started RDI [translation = Relationship Development Intervention] which I wasn’t very good at;
“Please, just for me, just once?”
“”Once’, what it is?”
“One time.”
“Oh, I not do it one time, I do it zero times.”
Or:
“Please, just to make me happy?”
“No, your face is happy now, that is stupid.”

Or, changing face to demonstrate unhappiness:
“Please, just to make me happy?”
“No, your face is a liar.” It’s enough to turn a mother prematurely grey. No, all such appeals were set aside together with the RDI book.

I look at my daughter, the expert at personal relationships aged 8.
“You should put it towards your college fund.”
“I have a college fund?” she asks with eyes like saucers. I don’t like to mention that any potential college fund has already been squanders threefold on her brothers’ therapy. I grab a cloth and slip to the floor “because I know that you’ll want to charge me more for obtaining a cloth first, another ten cents for disposing of the dirty cloth and object very strongly to wiping the splashes that are outside a three foot radius without additional payment.”

I stand and lob the cloth into the wash, “and besides I can do it myself is far less time than it takes to negotiate with you.” But I suspect that says more about my own shortcomings than hers.

Grandparents take particular delight in seeing their children struggle with the next generation. This is fair enough, as it is only right and proper that their should be a few compensations becoming a senior, now that status of ‘wise being’ has been eroded.

I expect it’s more amusing for them, the grandparents, if their their children breed later in life. The generation who choose to have everything, career, security then children later…….

Grandparents worry that it will never happen, or if it does, that they’ll already be in their graves. Their style of parenting has been thrown out along with the arc, disparaged and undermined. How they must chuckle.

Parents deal with their different children and their different characters as best they may. But more often than not, before you know it, you find that a peculiar turn of phrase has become the norm. It happens without you even noticing. It doesn’t so much ‘creep up on you,’ rather, it wasn’t there one moment, and suddenly it is, like a slight of hand.

When she asks “please can I watch some TV now?” my automatic response is, “wow that is such a great idea, wouldn’t that be fun, but first we need to………”
This is using a child’s self generated motivation and subverting it for the parent’s own selfish needs. I think that’s called switch and bait at home and American’s call ‘distraction.’

I suspect, although I have no corroborating evidence, that this method of child development will lead to a generation of permanently confused children. They never have the opportunity to follow through. They are always one step behind.

Alternatively, which is probably worse, you’ll end up with a more advanced and canny child. Perhaps a generation who will be one step ahead. With senility advancing apace, I can foresee that such a scenario isn’t so far fetched.

She won’t even bother to ask if she can watch television, instead she’ll leap frog over the whole issue with “hey Mom, I have a really great idea, after I’ve finished watching my television programme, I’ll be only to happy to…..” You’ll be left in the kitchen in a state of bewilderment, knowing that you’ve missed something but unable to determine exactly what it was or how it happened?